A pediatric neurologist told me definitively that my oldest son did not have autism. After a year of no improvement and assuming he was a particularly hard to diagnose, I got on the wait-list at the local university medical hospital. They were able to diagnose him quickly (apparently he’s pretty text book, but the pediatric neurologist didn’t ask the right questions). But he had been without supporting therapies and help in school for years as a result of the misdiagnosis.

My other kid (also autistic) had an ear ache. The urgent care doc was unfamiliar with how to deal with an autistic kid and assumed he didn’t have an ear infection. The next day his ear drum burst and we ended up at the big children’s hospital.

In both cases we had huge delays in appropriate care and had to pay twice.